Find support from other parents, families, and friends of pediatric pacemaker patients in private, online forums.
Each is a closed group, but you can message per the group’s guidelines to be accepted into it.
Facebook Pacemaker Support Group
This group is for pacemaker recipients and their family members, providing support and encouragement before, during, and after their procedure. They encourage others to share their experiences and knowledge with each other, as well as give encouragement to see the rainbow after the storm.
Facebook Young Pacemaker Patients & Supporters
This group is created with the intention of forming a place and resource for young cardiac pacemaker recipients. The members of this group have made it a warm, hopeful place where they can safely share their fears, anxieties, and accomplishments in a community of support and acceptance.
Reddit Pacemaker/ICD Group – r/PacemakerICD
For those who have, or care about those who have, an implanted pacemaker/defibrillator or CRT device. People speaking from their own experience and providing support.
Pacemaker Club
An online community for pacemaker, implantable cardioverter defibrillator (ICD) and cardiac resynchronization therapy (CRT) recipients. Their purpose is to help implantable device recipients meet, share information and support each other.