For Schools and Other Caregivers

The U.S. Department of Education

The U.S. Department of Education offers guidance on how schools can accommodate students with health impairments, such as pediatric cardiology conditions

Through ADA schools and other caregivers can learn about legal obligations for providing reasonable accommodations for students with health impairments, including heart conditions

Need to have a discussion about pediatric pacemakers with a group? Check out Lori Jones’ Website: Consider the Discussion Guide at the end of “Riley’s Heart Machine” to build a conversation around hearts, meaning our physical as well as our figurative, and how to take care of them

Some recent pediatric cardiology research studies are accessible or publicly available” And, GREAT inclusions here!

Pacing in Children – NIH

Long‐term outcomes of pacemaker implantation in children with univentricular versus complex biventricular surgical repair – NIH

Pacemakers and Other Cardiac Implantable Devices in Children: Learning From Practice Variation Including Outliers in the Electronic Age – AHA

 Cardiac pacing in pediatric patients with congenital heart defects: transvenous or epicardial?  – Oxford

2021 PACES expert consensus statement on the indications and management of cardiovascular implantable electronic devices in pediatric patients – ScienceDirect

Other Health Impairments

OHI provides information for schools and other caregivers can support qualified children with necessary accommodations and individualized education programs

Kids With Heart National Association for Children’s Heart Disorders is dedicated to providing support for families affected by congenital heart defects through surgical care packages, local support group meetings, and through an online listserv. 

The Pediatric Heart Network is a group of hospitals across the United States, Canada and other countries that conduct research in children with congenital heart disease or pediatric acquired heart disease and adults with congenital heart disease.