For Patients

Accessible, tailored resources to better support the children in understanding their health journey, staying informed, and feeling supported every step of the way.


UpBeat

UpBeat shares maps of pediatric cardiology programs nationwide, which can help explore top pediatric cardiology programs across the nation, offering specialized care and resources to support young patients and their families on their heart health journey

Beads of Courage

Beads of Courage: empowering children with a tangible symbol of their strength, resilience, and courage through every step of their journey

PaceGuard

PaceGuard allows active patients to participate in contact sports with special protective gear from specialty stores like this one!

Medtronic Connect

Upon registering, patients can request the informational coloring book “Jeff’s Pacemaker Helps His Heart”. Register here!

Johns Hopkins’ Blalock-Taussig-Thomas Pediatric and Congenital Heart Center

Johns Hopkins’ Blalock-Taussig-Thomas Pediatric and Congenital Heart Center offers top-tier, specialized care and innovative treatments, making it an invaluable resource for young heart patients and their families seeking comprehensive support

Lauren’s Hope

Lauren’s Hope: stylish, life-saving medical ID jewelry designed to empower confidence and safety every day!

St. Jude’s Free Coloring Pages and Games for Kids

Upon registering, patients can request the informational coloring book “Joey isn’t afraid anymore,” which shows how a baby kangaroo bravely goes through the process of pacemaker implantation and all it entails, among other options. Register here!

Additional Resources

Jeff’s New Pacemaker

Having a Pacemaker

Riley’s Heart Machine